Thank you to the founding sponsors of the ROADMAP Initiative:
- Intercept
- Mirum
- Albireo
- Escient Pharmaceuticals
- CymaBay Therapeutics
ROADMAP Initiative Webinars
The webinars covered four topics:
- Patient-Reported Outcome Measures (PROMs)
- PSC Research
- Drug Development
- Natural History
These key topics all lead towards PSC treatments and a cure. The webinars were divided into two sections. During the first half, experts disseminated information on the given topic. During the second half, attendees were divided into breakout rooms to discuss the topic and share thoughts/experiences. The second half was not recorded, but careful notes were taken. All comments were de-identified.
EDUCATIONAL MATERIALS
CLICK HERE for downloadable ROADMAP Initiative resources.
Learn more about the ICRNetwork (International Collaborative Research Network).
Learn more about PSC Partners WIND-PSC Prospective Synthetic Cohort Worldwide Integration of Natural History Databases.
Watch this video to learn more about the PSC Partners 2021 ROADMAP Initiative. This was part of a poster presentation at the 2021 Global Genes conference.
Click below for links to recordings of our past ROADMAP Initiative webinars.
